The Voice of Plc 1106-07 Final

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The Plymouth Laryngectomy Club (PLC) is an Affiliated Member of: The National Association of Laryngectomy Clubs (NALC)

In Association with Macmillan Cancer Support

Registered Charity Number: 273635

Our Funder: Macmillan Cancer Support

A Member ofThe Plymouth Third Sector Consortium (PTSC)

Patrons & Medical Advisors : Mr. W.M. BRIDGER, FRCS - Consultant ENT Surgeon,

Mr. Tass MALIK, BSc FRCS (Gen), FRCS (ORL H&N) - Consultant Otolaryngologist, Head & Neck / Thyroid Surgeon, Derriford Hospital, Plymouth.

The Plymouth Laryngectomy Club (PLC)A Charitable Support Group for Plymouth Cancer Laryngectomees

The Voice of PLCJune - July 2011

Address: c/o 80 Warleigh Avenue, PLYMOUTH, PL2 1DH, Devon, UK

Mobile: 07745819828 (text only) Email: [email protected] Website: http://plymouthlc.webs.com

FOREWORD BY THE SECRETARYWritten by Geoffrey N. Read

Dear Friends & Supporters!

We had a very successful Club Meeting in June with four

guests in attendance; three from the Speak Easy Club in

Cornwall and one of the Vice-presidents from the National

Association of Laryngectomee Clubs (NALC) who had

travelled down from Sunderland.

Ive lost my voice for a while and am awaiting yet another

dilation prior to having a new valve fitted. I can hear you

cheering from here...Im not deaf you know! But no

eating, drinking or talking for ten weeks or so is beginning

to become a nuisance!

It was for this reason that I was unable to report

everything at our June 2011 Meeting but I think Ive

covered most things in this newsletter. If not... then Im

sure one of youlllet me know!

Best Wishes

Geoff

EDITORIAL COMMENT

NTERNET Links. If youre reading this on-line and come

across words with blue lettering that are underlined,

then you can click on these links and be taken directly toanother site for more information on that particular topic.

Put your cursor over the link, hold down the Control (Ctrl)

Key and click! Ed.

GREETINGS!

ANY Happy Returns to Mr. Peter STOCK for his

Birthday on Friday, 24th

June 2011. Peter is a new

Member of PLC. Welcome Peter and Happy Birthday!

APPY Birthday to Martin FISHER for his birthday on

Saturday, 25th

June 1011. All the best Martin!

EST Wishes to the Secretary of PLC, Geoff READ, for

his birthday on Sunday, 10th

July 2011.

ANY Happy Returns to Ms. Rosmarie STEPHENS for

her Birthday on Saturday, 16th

July 2011. Rosemarie

is a full Member of PLC. Happy Birthday Rosemarie!

And finally...

APPY Anniversary to Christine and Jim REID forSunday, 10

thJuly 2011. Congratulations to you both!

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Contact The Voice of PLC Newsletter Editor Geoff Read on (01752) 563800 or 0774581928 (text only)

or email: [email protected], or go to PLC website at http://plymouthlc.webs.com2

PLC MEETINGS

HIS is just a reminder that in accordnace with our

Constitution, the Secretary does record and produce

minutes of all meetings held by the PLC. However, these

are not generally distributed and the salient points are

always included in these newsletters. That said, should

any member wish to have sight of any of our minutes

then please contact Geoff.

THE PLC JUNE 2011 MEETING

UR June 2011 Meeting (pictures on the right) took place

at the Mustard Tree Cancer Support Center at Derriford

Hospital on Monday, 6th

June 2011 at 11 a.m. There were 13

individuals in attendance including four guests:

Bert CULLING. Bert is one of the NALC Vice-presidents who had travelled down from

Sunderland to give a Talk about NALC and its

ongoing Educational Project. Ted presented Bert

with a Thank You Card and a set of Plymouth

Lapel Badges as a small token from PLC.

Ron & Rose WILLS, and Val FROST. Ron is Chairof the Speak Easy Club in Cornwall. It was a

delight to host these three from over the River

Tamar as our two clubs are beginning to build up

quite a good rapport in trying to help each other.

Val has given Geoff some invaluable information

regarding Goody Bags... a project whereby new

Laryngectommes receive a bag of useful goodies.

The Speak Easy Club had recently donated 100

to the PLC to help the Club with its postage costs.

This was extremely welcome and Ted passed onthe thanks of all members of PLC.

Geoff and Jean hosted all four at the Jack Rabbit Inn

afterwards. Other members were too busy to attend!

OMMITTEE Meetings. We are well overdue a meeting

but this is because Geoff is currently unable to talk!

Hopefully Geoff will recover his voice soon as a lot of items

have had to be shelved! The more items that the

Commitee can resolve means less time spent on them at

our normal monthly Club Meetings!

OMMITTEE Member. Organising our meetings and

social events is taking up more and more of Geoffs time

and he does have other commitments! Members agreed

therefore that the Committee should have a fourth member:

An Entertainments Member to organise the Clubs social

diary. Although Members were in favour not one

volunteered! Interested? Then do please contact Geoff!

XETER Head & Neck Cancer Support Group. Geoff is in

contact with Mac M. whos setting up a new support

club at Exeter and it was thought that it might be a good

idea if our two clubs became affiliated. However, our

discussions have had to be postponed until such time as

Geoff has regained his voice... soon we hope!

The above photographs are all by courtesy of Ron WILLS,

Chair of the Speak Easy Club from Cornwall. Taken either

at the Mustard Tree or at the Jack Rabbit afterwards.

Thank you, Ron!

You can view the slide show at: Photobucket.com

UNDING. PLC has been fortunate in receiving a grant

from MacMillan Cancer Support and a donation from the

Speak Easy Club. However, we need to firm up our spending

policy and assess whether our Club needs to bid for further

funding. Does any Member have any suggestions on how we

should be using our funds or do you have any suggestions for

why we need further funds? Please speak to Geoff!

UNDRAISING for Macmillan Cancer Support. Geoff

was in the process of setting up meetings with South &

West of England Macmillan Involvement Coordinator and

the North Devon, Plymouth & Tamar Valley Fundraising

Office of Macmillan Cancer Support at Launceston to

ascertain how best PLC can best get involved with

Macmillan. Unfortunately Geoffs voice has let him down

and discussion will continue just as soon as the miracle

workers restore it!

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ACMILLAN Grant. A question was raised at the

May 2011 Meeting asking what restrictions had

been placed on the expenditure of the Macmillan Grant

and whether the funds were to be considered as

Restricted or Unrestricted funding. In other words, did

PLC have any degree of flexibility on how the grant could

be expended? PLC has since received official advice:

We do require groups to spend the grant based on the

breakdown confirmed in the Award Letter. However it is

recognised that circumstances often change and there is a procedure for requesting an amendment to the grant

breakdown.

UEST Speakers. A further question was raised (by a

visitor to our Club) concerning the legality of paying

for gifts or fees to Guest Speakers by PLC from money

awarded by a charitable institution such as Macmillan.

We have since received the following advice:

Its fine for the group to spend the grant award on speaker

fees or a small gift as long as this is what part of the grant

was awarded for. If you were awarded funds for

something else and have now decided to attribute these

funds to speaker fees / gifts, you will need to fill out a

grant amendment request form.

EMBERSHIP Status. Our current Membership Status

is shown in the table below:

POSTAL EMAIL TOTAL

Confirmed Members: 9 9 18

Prospective Members: 2 1 3

Confirmed Friends: 5 21 26

TOTALS: 16 31 47

ONTACT Details. Of the 16 Members and Friends who

are not on email Geoff has only telephone numbers for

four! This makes it difficult if ever we need to get in touch

with them urgently for the cancellation of a meeting for

instance. Geoff sent out a Form with the previous Newsletter

for all those Members who are not on line to complete giving

their full contact details... including their telephone numbers.

Thank you to the one reply received so far!

eview of Club Membership. It has been noticed that

several Laryngectomy Clubs throughout the UK have

broadened their membership to include Head & Neck Cancer

patients rather than just Laryngectomees. We haveascertained from the Secretary of the National Association of

Laryngectomee Clubs (NALC) that this is all perfectly

acceptable to them. Our Members agreed to this in principle

at their April 2011 Meeting. Any actual change would first

need an amendment to our Clubs Constitution and this could

be done at our AGM in September 2011. Before considering

further action however it might be prudent to take advice

from our medical specialists. It is hoped to discuss this

matter at our July 2011 Meeting.

OTES Made by the Late Professor David MOREBY.

David was a laryngectomee and a prominent member

of Plymouth society. His notes concerning his illness areavailable for viewing on application to Geoff.

AFFLE. 11.50 was raised on the Raffle. Eileen won

one the first prize and proceeded to win the next prize

but put it back! Bert and Rose also won but both very

kindly donated their prizes to the next months raffle!

Maggie won some chocolates when she was out of the

room! As the winner, Eileen will be running the raffle at

the July 2011 Meeting.

UBSCRIPTIONS. We took a comparison between the

Speak Easy Club and PLC. Members then agreed at the

May 2010 Meeting that our subscriptions should remain as

they are now until after our AGM in September 2011. Our

current subs are:

Joining Fee. A mandatory one-time payment of 5 per

Member.

Monthly. A voluntary subscription of 1 per month

per attending Member.

THE PLC FORECAST OF EVENTS

ULY 2011 PLC Meeting. Monday, 4th

July 2011: The

PLC Club Meeting starts at the Mustard Tree CancerSupport Centre at 11 a.m. After the meeting therell be a

Talk by Ulla ROHRBECK fromHeimomed UK.

UGUST 2011 PLC Meeting. Monday, 1st

August 2011:

The PLC Club Meeting starts at the Mustard Tree

Cancer Support Centre at 11 a.m.. After the meeting

therell be a Talk by Miles WILLIAMS fromPlaton Medical.

EPTEMBER 2011. Sunday, 4th

September 2011: This will

be held at theNorth Lakes Hotel, Penrith in Cumbria on

and will cost 15 per head. A response is needed by Friday,

5th

August 2011 so if you wish to attend this function do

please let Geoff know by the time of our July 2010 Meeting.

EPTEMBER 2011. Monday, 5th

September 2011: The

PLC Club Annual General Meeting starts at the Mustard

Tree Cancer Support Centre at 11 a.m. followed by Lunch

at the Jack Rabbit. After the meeting therell be a Talk by

Charles HANDLEY fromCountrywide Supplies Ltd.

EPTEMBER 2011. Wednesday, 14th

September2011:

The Speak Easy Club in Cornwall has made a provisional

booking at Devoran for a soup and sandwich lunch, if the PLC

are able to accept their invitation for a joint meeting. The

Speak Easy Club could arrange to meet anyone coming by

train or bus at Truro. Geoff will require names of thosewishing to attend by the time of the July 2011 Meeting.

ALENDAR of Events. A copy of the ClubsCalendar of

Events, including Future Entertainments for the next

12months or so, is available on our Clubs website. Please

keep yourselves up-to-date by taking an occasional peek!

OACH Trip. A trip was proposed at the May 2011

Meeting but there were no suggestions about dates,

themes or destination! Any thoughts? Please contact Geoff!

DEN Project. The consensus at the May 2011 Meeting

was that most Members had already visited the EdenProject at one time or another but this will be discussed

again if anyone shows interest. Just contact Geoff!

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ACK Rabbit Inn. Geoff has cancelled all bookings due to

the lack of support by Club Members.

ALK on Non-Patients: Partners & Carers. At the May

2011 Meeting it was proposed that it would be good if

our Club could have a talk from non-patients such as partners

and / or carers so as to give a different perspective on what

they have had to experience. No decision was made and we

are looking for someone to organise this? Interested? Please

contact Geoff!

THE NATIONAL ASSOCIATION OF

LARYNGECTOMEE CLUBS (NALC)

NNUAL General Meeting: Monday, 16th

May 2011.

Geoff READ represented the PLC at the meeting held

atThe Hallam Conference Centrein London. This picture

shows Geoff (left) meeting other delegates.

Photograph courtesy of Ian HONEYSETT, CLAN Magazine

View the slideshow atPhotobucket.com.

NNUAL Report for 2010. Geoff has one copy of the

Annual Report and if any Member wishes to have sight

of it they should contact Geoff. Surprisingly this wasnt sent

to us by email nor is it available on the NALC website!

LAN Magazine. Copies of the June 2011 edition have

been received and issued to PLC Members. If youre a

PLC Member and you already receive a copy direct from

NALC then do please let Geoff know so that he can give

your copy to someone else! Its good to see that our Club

received a mention here and there!

RAVEL Insurance for Laryngectomees. Good advice can

be obtained from:

The Mustard Tree Cancer Support Centre leaflet TheMacmillan Cancer SupportWebsite

Important: The companies listed in the above outlets have

been recommended by at least one person with cancer for

giving them a reasonable deal on their travel insurance.

Inclusion of a company or broker below does not mean thatthe or PLC recommends them.

Julia recently advised us that one of her patients asked her to

let PLC Members know that he received a good deal on his

travel insurance fromBarclays Premier Life Travel Insurance.

The contact telephone number is 0800 158 2267. This

company agreed to include Laryngeal Cancer cover in the

policy.

AN ARTICLE INTHE LOS ANGELES TIMES

By ITZHAK BROOK

Y TURN: Touched By Another Human's Touch.

A doctor diagnosed with cancer discovers the power

a hug can have on an ailing patient.

Itzhak BROOK is a paediatric infectious disease physician at

Georgetown University.

I was deeply shaken to learn I hadhypo-pharyngeal cancer.

As a physician, I had access to my

hospital's laboratory results, so I took a

shortcut: Rather than wait for my surgeon

to call me, I looked for my name in my

hospital's pathology laboratory log book.After my name, the log book stated in no

uncertain terms: "mildly differentiated

squamous cell carcinoma."

I could not believe my eyes. Was this

possible? Could it be a mistake? In spite

of the hopeful questions that permeated my mind, I knew it

was not a mistake: Right here, in front of me, in black and

white... my own death sentence. Still, to be convinced that

the diagnosis was real, I had to view the biopsy specimens

under the microscope myself... and there it was.

In that very instant, my whole world changed. I had always

had a sense of invulnerability. Now I was left with uncertaintyabout my prognosis and future.

I was in a state of desperation and disbelief when I left the

pathology laboratory and walked into my internist's office to

break the news to him. He slowly rose out of his chair without

uttering a word and gave me a big, supportive hug.

It felt so good to know that he deeply cared for me beyond

our professional relationship. His embrace moved me... made

me feel that I was surrounded by those who truly appreciated

my pain and distress, and who shared my personal tragedy. It

meant much more at that moment than a thousand words of

support or elaborate explanations.

It was the power of a caring, human touch. I knew that I was

not alone in my future struggles, that he would be beside me

all the way.

I had never been hugged by a medical caregiver. Nor had I

given a hug to a patient: I always believed in maintaining a

professional distance between them and me. Yet at that

moment, I learned there may be situations in medical

practice where the power of a hug eclipses everything else

one can offer.

In the realm of modern medicine, where machines and tests

often substitute for close patient-physician contact, this

fundamental art is often forgotten. Even a simple pat on the

shoulder or a warm handshake conveys genuine care and

concern.

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In fact, there is scientific evidence that human touch can

generate oxytocin and endorphins, which ameliorate pain

and create a feeling of well-being.

Unfortunately, I had to undergo a total laryngectomy to have

my cancer removed. The period after my surgery was very

physically and emotionally trying, as I battled numerous

medical problems and also struggled to regain my ability to

speak. What eased those difficult months was the knowledge

that my otolaryngologist's door was always open to me and

that he would act immediately to assist me in any way hecould. His dedication, emotional support, sincere care and

friendliness helped me overcome many of the difficulties and

problems I encountered. They were indispensable on my

road to recovery.

I sometimes went to his office several times a week... often

just to talk with him and tell him how I was doing. I always felt

welcomed. He greeted me with a big smile and hugged me

every time I left. This simple act created a bond of intimacy

between us and made me feel that I had a friend.

My personal experiences changed my attitude toward my

own patients. I am less concerned now about maintaining a

professional distance or avoiding a caring touch or hug when

appropriate. I have learned that such gestures can

significantly deepen the healing relationship between patient

and physician.

As a laryngectomee, I have found that speaking is often

difficult and challenging. So I am fortunate to have discovered

that the "power of a hug" can convey so much more than the

spoken word.

Itzhak BROOK is the author of the 2010 book "My Voice: A Physician's

Personal Experience With Throat Cancer."

He is also a registered Friend of PLC!

More atdribrook.blogspot.com;

contact Brook [email protected] .

My Turn is a forum for readers to recount an experience related to

health or fitness. Submissions should be 500 words or fewer, are subject

to editing and condensation and become property of The T imes.

Email [email protected] . Read more atlatimes.com/myturn .

HUMOUR IN MEDICINE

WO Doctors.

Best friends graduated from medical school at the same time and

decided that, in spite of two different specialties, they would open a

practice together to share office space and personnel.

Dr. Smith was the psychiatrist and Dr. Jones was the proctologist; they

put up a sign reading:"Dr. Smith and Dr. Jones: Hysterias and Posteriors".

The town council was livid and insisted they change it.

So, the doctors changed it to read: "Schizoids and Haemorrhoids".

This was also not acceptable, so they again changed the sign.

"Catatonics and High Colonics"; again, no go!

Next, they tried "Manic Depressives and Anal Retentives";

thumbs down again.

Then came "Minds and Behinds"; still no good.

Another attempt resulted in "Lost Souls and Butt Holes";

unacceptable again!

So they tried "Analysis and Anal Cysts"; not a chance.

"Nuts and Butts"; no way. "Freaks and Cheeks"; still no good.

"Loons and Moons"; forget it.

Almost at their wits end, the docs finally came up with:

"Dr. Smith and Dr. Jones - Odds and Ends".Everyone loved it!

Submitted by Geoffrey N. READ

AN IMPORTANT NOTICE

RITISH Red Cross in Plymouth. Whilst undergoing a

Pre-operation Medical Assessment at Erme Ward the

other day, the Sister-in-Charge asked if I had heard about

the Transport Service that the Red Cross offer to in-

patients in certain circumstances. Apparently, all you have

to do is to telephone them on (01752) 788791 and tell

them times that you need to be at the hospital for your

operation and they come and pick you up. This apparently

also only applies to the Plymouth area. I could find

nothing on the internet about this but will test it out as

soon as I know the date for my next op! Watch this space!

Submitted by Geoffrey N. READ

NEWS & CURRENT EVENTS

DISCLAIMER

Please note that the views and opinions expressed in this section are

not necessarily those held by the PLC Committee nor its Members.

ITY 'Ahead of the Game' on Healthcare Reforms. This

article was published inthe Plymouth Heraldon Tuesday,

14th

June 2011:

PLYMOUTH is already "ahead of the game" onNHS reforms,

says a city doctor as a report of recommendations was

released.

The Future Forum yesterday unveiled its findings after

carrying out consultations in the progress of the controversial

Health & Social Care Bill which would see the planned

abolition ofprimary care trusts(PCT).

The wide-ranging report called for a requirement for

consortia to consult other health professionals during

commissioning. It also said plans to increase competition inthe NHS must be scaled back.

In Plymouth, Sentinel... which is run and owned by 44 GP

practices... was last year chosen as the body to take over the

city's health budget after the planned abolition of the PCTs.

Dr. John PICKARD, who is the Chair of the local medical

committee, said: "Sentinel was started from grass roots GPs

and will emerge as the commissioning group for Plymouth.

Sentinel's commissioning board is already very inclusive... we

have two consultants and medical directors as well as a chief

nurse and a lay member.

To read the full articleclick on this link.

OUNTRYWIDE Supplies Ltd. Geoff has received a hard

copy of the latest 2011 Product Catalogue listing all

available Laryngectomy and Tracheostomy Prescription

Supplies. You can obtain a copy by telephoning 0800-783-

1659 or by visiting www.countrywidesupplies.co.uk/stoma .

Alternatively contact Geoff.

OSPITAL Pharmacy Opens. This article was published

inthe Plymouth Heraldon Saturday, 4th

June 2011.

A NEW outpatient pharmacy has opened at Derriford

Hospital. The service is next to the Outpatient Department,

formerly the site of the Charity Coffee Shop run by theWRVS,which is finalising with the hospital a new location on site.

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The Voice of Plc 1106-07 Final