United States Health Information Knowledgebase (USHIK)Metadata Registry Project

Glenn M. SperleHealth Care Financing Administration410 786-4610

25 May 2000

Health Level Seven

25 May 2000

2

Purpose of BriefingProvide Status of Metadata Registry Project

– United States Health Information Knowledge

Review– Goal

– Today’s Situation

– Approach

– Metadata Registry Overview

– Some Examples

– Point of Contact

25 May 2000

3

Metadata Registry Project Goal

Build, populate, demonstrate, and make available for general use a metadata registry to assist in cataloging and harmonizing data elements across multi-organizations.

Utilize selected Health Insurance Portability and Accountability Act (HIPAA) data elements for demonstration.

25 May 2000

4

Today’s Situation (i)HCFA and DoD have developed the USHIK

to demonstrate the use of a metadata registry that:– Focuses on Health Insurance Portability and

Accountability Act (HIPAA) data.– Contains data definitions from X12, HL7, and NCPDP.– Functions based on ISO/IEC 11179 metadata standard– Utilizes the Australian National Health Information Model

(NHIM) high level information model to facilitate grouping of data definitions.

USHIK is available for review at:http://hmrha.hirs.osd.mil/registry/

25 May 2000

5

Today’s Situation (ii)HCFA has offered to support operation of the

USHIK by Health Informatics Standards Board (HISB) for one year in order for HISB and Standards Development Organizations to utilize and evaluate metadata registry benefits.

25 May 2000

6

HISB and seven SDOs have accepted HCFA’s offer to utilize the USHIK metadata registry to evaluate metadata registry capabilities

– Accredited Standards Committee - Healthcare (X12N)

– American Dental Association (ADA)

– American Society for Testing and Materials Committee E31 on Healthcare Informatics (ASTM E31)

– Health Industry Business Communications Council (HIBCC)

– Health Level (HL7)

– Medical Device Communications Industry Group (IEEE 1073)

– National Council for Prescription Drug Programs (NCPDP)

Today’s Situation (iii)

25 May 2000

7

Five additional organizations are interested in providing input or observing – Center for Disease Control (CDC)– Department of Defense, Health Affairs (DoD HA)– National Committee on Vital and Health Statistics

(NCVHS)– Government Computer-Based Patient Record (G-CPR -

Joint Department of Defense, Health Affairs (DoD HA), Department of Veteran Affairs (VA), and Indian Health Service (IHS) Project)

– Health Care Financing Administration, End Stage Renal Disease Program (HCFA ESRD)

Today’s Situation (iv)

25 May 2000

8

ApproachTwo phase approach

– Initial startup to provide access to current SDO data dictionary content and basic metadata registry operations

• Load “As-Is” information

• Minimize impact on SDO

• Map data elements to Australian National Health Information Model (NHIM)

– Establish procedures for achieving metadata registry content consistency

• Incorporating into SDO operations

• Versioning of data elements

• Required metadata and quality metrics

• Enhance capabilities of metadata registry

Methods of Finding Data Elements

Metadata Registry Overview

…Birth DateHair ColorEye ColorSex...

Data Elements

ABCDEFGH..

Initiatives

Health Insurance Portability and Accountability Act...

Data Collections

HCFA Long Term CareBRFSS

Data Agreements

X12NCVHS Core DataNCPDP

Organizations

CDCAHCPRNCVHS

Models

HL7-RIMDoD HA FAM-DAIHW

What data elements are used?

Data elements are described in common format.

References to Authoritative Sources

NCPDP (National Council for Prescription Drug Program)

Data Element

X12 (American Standards Committee)

Transaction Set

-Data Element

-Composite Data Element

HL7 (Health Level Seven)

Reference Information Model

-Subject Area

-Class

-Attributes

NHIM (Australian National Health Information Model )

Model -Model Subtype -Information Model

Subtype

-Data Element

-Data Concept

-Composite Data

Element

-Derived Data

Element

…Person_SexGenderSex_Category Code...

Where are data elements defined?

Codes can be downloaded for use in applications.

•A metadata registry is a place to keep facts about characteristics of data that are necessary to clearly describe, inventory, analyze, and classify data.

•A metadata registry supports data sharing with cross-system and cross-organization descriptions of common units of data.

•A metadata registry assists users of shared data to have a common understanding of a unit of data’s meaning, representation, and identification.

Identifying and Definitional Attributes: Data Element ID : 07-329-4837.00000692.v1

Name : Gender Code Context : X12 Data Dictionary Definition : Code indicating the sex of the individual Status : Received as of 01/19/1999 Example : Synonyms/Keywords : Comment :Data Collection Methods :Relational and Representational Attributes: Data Type : ID Representational Form : Representational Layout : Minimum Size : 1 Maximum Size : 1 Unit Of Measure : Precision : Minimum Range : Maximum Range :Data Domain: Permissible value Domain Meaning Name Domain Meaning Definition Text A Not Provided B Not Applicable F Female M Male N Non-sexed U Unknown X UnsexableRelated Data References: Object Relationship Related Item Type Gender Code is composite part of X12 Data Dictionary Standards Alternate Names and Contexts: Name Context Gender Code X12 Data Dictionary 1068 X12 Data Element Number

25 May 2000

10

Data elements are described in common format. (i)

25 May 2000

11

Data elements are described in common format. (ii)

25 May 2000

12

Data elements are described in common format. (iii)

25 May 2000

13

High Level Information Model Assists in Grouping Data Elements

25 May 2000

14

Data Elements are Linked to Model Views

Australian Institute o f Health and W elfare

B e lie f A ttitude ...

P e rson V iew

Lega l C haracte ris tic

D a te o f B irthS ex C odeG ender C odeC itizensh ip S ta tus C odeR ace o r E thn ic ity C ode

D em ograph ic C haracte ris tic ...

P e rson C haracte ris tic S ta te o f Hea lth and W e llbe ing ...

N a tional H ea lth In fo rm a tion M ode l - Ve rs ion 2

Model Views

Data Elements

25 May 2000

15

Data Elements Linked by Different Organizations Appear Together

NCPDP Data Element(0060-02-166-0014 Registration Authority)

X12 Data Element(0060-07-329-4837 Registration Authority)

25 May 2000

16

Comparison Matrix Aids in Harmonizing Data Elements

25 May 2000

17

Data Element Usage Shows Linkages Between Data Elements

25 May 2000

18

Future

HISB will manage the release of the new USHIK

HCFA will utilize an internalized version of USHIK for managing End Stage Renal Disease and Peer Review Program metadata

25 May 2000

19

Point of Contacts and Example Metadata Registry Sites Health Care Financing Administration

– Bob MayesDirector, Information Systems Group

Office of Clinical Standards and Quality

Health Care Financing Administration

7500 Security Blvd., Bldg S3-02-01

Baltimore, MD 21244-1850

410.786.6872 / 410.786.8532 Fax

rmayes@hcfa.gov

Department of Defense - Health Affairs– Marco Johnson

Chief, Operational Architecture

Information Management

Information Management, Technology & Reengineering

TRICARE Management Activity

Office of Assistant Secretary of Defense ‑ Health Affairs

5111 Leesburg Pike, Suite 810

Falls Church, VA 22041-3206

703.681.5611 / 703.681.8845 Fax

marco.johnson@tma.osd.mil

http://www.hirs.osd.mil/hdp/index.html

National Health Information Knowledgebase (NHIK) from Australian Institute of Health and Welfare (AIHW)– http://www.aihw.gov.au

Environmental Data Registry (EDR) from the U.S. Environmental Protection Agency (EPA)– http://www.epa.gov/edr

United States Health Information Knowledgebase (USHIK) on DoD Health Information Service (HIRS)– http://hmrha.hirs.osd.mil/registry/

25 May 2000

20

USHIK - HL7 Information Model