Embed Size (px)
DESCRIPTION
Citation preview
PARTICIPATORY PERSONAL DATAMEDIATED PARTICIPATION & SOCIAL CONCERNS
2012 Summer Social WebshopKatie ShiltonAssistant ProfessorUniversity of Maryland
Participation With Data
Example: Boyle Heights Community Development
Example: Mobile HealthData collection for participant self-care, clinical care, & research
http://openmhealth.org/
Social Concerns
As an Environmental Protection Agency (EPA) employee put it:
…[Participatory sensing] is either terrifying or electrifying, depending on who does it and how the data are
processed….
Surveillance or participation?What differentiates participation with data &
surveillance?
• Making decisions about when, how to collect (consent)
• Accessing data and controlling its flow (privacy)
• Preventing powerful corporations or law enforcement from using it against you (equity)
• Being able to have a clean slate (forgetting)
Values in Design
Study: Designing for ValuesEthnography, action research at the Center for Embedded Networked Sensing (CENS)
8
Qualitative study of designParticipant observation InterviewsDocument analysis
Findings: Values LeversActivities that build consensus around social values as design criteria
• Some levers are activities already present within design;
• Others introduced to design by leaders, advocates.
Inherent Values Levers
Experiencing Internal TestingGrad student G: If I’m going somewhere and I don’t want anyone to know, I think: I need to turn off this application, or leave my cell phone…
Grad student L: I did data collection for T., like for a week or something. Then I felt like, not privacy ... but I felt that I wanted to go out more actively. I felt like: oh, they are watching me, I need to be more active.
11
Introduced Values Levers
Leader AdvocacyAdvocacy during discussions, setting project directions, etc
But also procedures• Participatory sensing data collection form• Administrative support
13
Fitting Values Into Design
Agree on Values
• Privacy• Consent• Equity• Forgetting
Operationalize Design Principles• Local control• Legibility• Long-term
engagement• Parsimony
Operationalize Tech Features
• Architecture• UI design• Affordances• Data
retention procedures
Values-Based Solutions: Personal Data VaultsSecure storage: like a bank account for data
Prototypes built at CENS; Stanford; AT&T Labs
Commercial products emerging (e.g. Personal.com)
Values-Based Solutions: PolicyNeed for regulation in mobile data ecosystem
• No legislation protects this data – even health data!
Need to protect data vaults
Protection can encourage participation
Future Work: The Mobile Data Ecosystem
Ecosystem study of start-ups, telecoms, regulators, users
Focus on privacy as a lever in decision-making.• When does it hinder design and policy?• When does it inspire new creativity?
Better understanding users• Survey of privacy concerns in context• Study of participation motivations & practices, values &
concerns
TakeawaysBig questions at the intersection of:
• technological trajectories (mobile data collection) • social change (values, ethics, justice)
We need to understand:• how these techs affect users, institutions• how to design socially just technologies
And we can be part of design• Professional ethics, research ethics = values tradition• Defining and operationalizing values = a skill set for
design
