5th Edition – Paris -- June 4-5, 2015

Patient Opinion Leadersand Pharma

Nuria Zúñiga @tulupus

5th Edition – Paris -- June 4-5, 2015

Why me?• I am a person like any other: dreams, goals,

achievements, …• I also have lupus• I know how it is like to live with a chronic illness• My lupus has made change my life: dreams, goals,

achievements, …• I listen to other patients

5th Edition – Paris -- June 4-5, 2015

How did I emerge?

Other patients

Lupus got complicated…

5th Edition – Paris -- June 4-5, 2015

From blogger to POLI am only a patient that has put a voice to what it feels like to live with a chronic illness.

By listening to people this web has become what it is today and I have become a POL (pledge out loud) person.

Now I write about…• Treatments• Psychology• Family

5th Edition – Paris -- June 4-5, 2015

Am I a Patient Opinion Leader?• "Patient Opinion Leaders (POL), are individuals who are well versed in a

disease either as sufferers or caretakers of individuals with chronic disorders and share their knowledge on the particular disease with others" and that in most cases happen to share this knowledge in social media: Twitter, Facebook, blogs...”

How deep is my knowledge in lupus?

Is that the question???

5th Edition – Paris -- June 4-5, 2015

The right questions are:  

• Do I know how it feels like to live with a chronic illness?• Do I know what patients need?• Can I help pharma help patients, doctors and relatives?• Am I responsible when I talk about health?

Am I a Patient Opinion Leader?

5th Edition – Paris -- June 4-5, 2015

POLs and Pharma

Yes…Do you have lupus?

Many illnesses are treated with drugs that

are not specifically indicated for that

condition

5th Edition – Paris -- June 4-5, 2015

The change is arising…I collaborate with several Pharma companies in projects not directly related to lupus.

PharmaHealth Specialists

Patients

5th Edition – Paris -- June 4-5, 2015

POLs and PharmaOther patient common needs:

• Psychology.• Social awareness.• Treatment adherence.• Healthy life habits.• Patient education.

5th Edition – Paris -- June 4-5, 2015

5th Edition – Paris -- June 4-5, 2015

Merci!Nuria Zúñiga

@tulupushttp://tulupusesmilupus.com