Royal Society of Medicine

Patients as Partners

Radboud REshape & Innovation Center

donderdag 5 juli 12

Lucien Engelen (@lucienengelen)

Radboud University Medical Centre, The Netherlands

Head Regional Emergency NetworkDirector Radboud REshape & Innovation CenterAdvisory to the Executive Committee

NOT a doctor, and extremely IMpatient ;-)

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Mohammed (Al-Ubaydli) ís right !

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Mohammed (Al-Ubaydli) ís right ! patients know best

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is only constant system

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is only constant system over 250 communities by 2015

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Crowdsourcing Adolescent Young Adults community

Tossing in some innovations Crowdfunding (WILL change HC) Gutfeeling

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How many of you are here because they are :

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doctors ?


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doctors ?

policymakers ?


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doctors ?

policymakers ?

management ?


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doctors ?

policymakers ?

management ?

researchers ?


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doctors ?

policymakers ?

management ?

researchers ?

patients ?


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Medicine X Stanford

Medicine 2.0 Harvard

TEDMED Wash DC

Doctors 2.0 Paris

TEDxMaastricht

World PD conference

National Health Debate

....

donderdag 5 juli 12

Medicine X Stanford

Medicine 2.0 Harvard

TEDMED Wash DC

Doctors 2.0 Paris

TEDxMaastricht

World PD conference

National Health Debate

....


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Health 1.0

Health 2.0

Participatory Medicine

Participatory Healthcare

from Health1 . 0 to Participatory Healthcare


donderdag 5 juli 12

Health 1.0

Health 2.0

Participatory Medicine

Participatory Healthcare

from Health1 . 0 to Participatory Healthcare

Radboud REshape & Innovation Centerfound 46 definitions of Health 2.0

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Radboud REshape : dare to dream ... dare to do ... dare to fail ...

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Engelen, Derksen 2010


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Engelen, Derksen 2010


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Shift happening in Media


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Shift happening in regimes


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Use of SoMe by hospitals in Europe and USA (%)

Youtube Twitter Facebook Linkedin

Preliminary results EUPeriod: Sep 2010 - Feb 2011 *NL FB = HyvesUSA: Data of Ed Bennet www.ebennett.org


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http://www.ebennett.org


Use of SoMe by hospitals in Europe and USA (%)

0

10

20

30

40

50

60

Germany Switzerland Austria Sweden Norway UK Netherlands USA

Youtube Twitter Facebook Linkedin

Preliminary results EUPeriod: Sep 2010 - Feb 2011 *NL FB = HyvesUSA: Data of Ed Bennet www.ebennett.org


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Crowdsourcing = outsourcing

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Wisdom of the crowds

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Wisdom of the crowds

Crowd funding

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Ask the crowd for help

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Passed 100.000 downloads

17.5000 AED’s in Database

Soon blind spots and geo-send to dispatch

Run by UMC so in-dependent non-commercial

Worldwide coverage

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donderdag 5 juli 12

http://www.aed4.eu

http://www.aed4.eu

http://www.aed4.eu


Joined now :

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Joined now :

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Joined now :

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Joined now :

20.000 AED volunteers

actively crowdsourcing

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Joined now :



Would LOVE to collaborate i.e. with :

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Joined now :



Would LOVE to collaborate i.e. with :

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Prof. Dr. Bas BloemConsulting NeurologistRadboud University Medical Centre


donderdag 5 juli 12

http://www.parkinsonsvoice.org








We’ve asked the help of PD patients :over 50 patient-opinions 321.000 impressions

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We’ve asked the help of PD patients :over 50 patient-opinions 321.000 impressionswithin 24 hours

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www.parkinsonsvoice.org


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co-founder INTEL, Any Grove PD patienthad a lot of data, Max ran algorithmsClaimes now 99% accurate

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Goal 10.000in 3 days 3.500 recordings Max Little, TED Fellow : [email protected]

co-founder INTEL, Any Grove PD patienthad a lot of data, Max ran algorithmsClaimes now 99% accurate

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mailto:[email protected]

mailto:[email protected]

MyHealthstory.me


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MyHealthstory.me


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MyHealthstory.me


Dr Roni Zeiger MDa.k.a.

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MyHealthstory.me


Dr Roni Zeiger MDa.k.a.

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donderdag 5 juli 12


Empower patients

Disrupt healthcare

No add. hardware

Secure

Recording

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Neurologist

optionRelative at work

option Physiotherapist other clinic

The Patient is offered virtual hospital visit and or group consult from Multi Disciplinary MS Team

“”

Patient at home


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So, we often THINK we

know what our patients

need, want or looking

for, but we DON’T !

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CLO

ChiefListeningOf!cer

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Radboud REshape & Innovation Center900 people , 3500 waitinglist, 35 locations worldwide

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donderdag 5 juli 12

February 4th, 2013Radboud REshape & Innovation Center

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www.patienstscrowds.com

donderdag 5 juli 12

http://www.partienstscrowds.com



crowdfunding for health(care)

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organize patients(groups) to design & fund research

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organize patients(groups) to design & fund research

non-geographical

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Patients are least utilized resources in HC

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you can’t keep up with speed of technology

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you can’t keep up with speed of technology

The crowd will change HC dramatically

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Building a kind of Swiss Army knife


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This is whereall the

magic happens

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This is whereall the

magic happensYour

comfortzone

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REshape : Dare to dream ... Dare to do ...

Dare to fail ...

donderdag 5 juli 12

REshape : Dare to dream ... Dare to do ...

Dare to fail ...

donderdag 5 juli 12

Health & Medicine

Royal Society of Medicine