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Patients as Partners
Radboud REshape & Innovation Center
donderdag 5 juli 12
Lucien Engelen (@lucienengelen)
Radboud University Medical Centre, The Netherlands
Head Regional Emergency NetworkDirector Radboud REshape & Innovation CenterAdvisory to the Executive Committee
NOT a doctor, and extremely IMpatient ;-)
donderdag 5 juli 12
donderdag 5 juli 12
Mohammed (Al-Ubaydli) ís right !
donderdag 5 juli 12
Mohammed (Al-Ubaydli) ís right ! patients know best
donderdag 5 juli 12
Mohammed (Al-Ubaydli) ís right ! patients know best
is only constant system
donderdag 5 juli 12
Mohammed (Al-Ubaydli) ís right ! patients know best
is only constant system over 250 communities by 2015
donderdag 5 juli 12
Crowdsourcing Adolescent Young Adults community
Tossing in some innovations Crowdfunding (WILL change HC) Gutfeeling
donderdag 5 juli 12
How many of you are here because they are :
donderdag 5 juli 12
doctors ?
How many of you are here because they are :
donderdag 5 juli 12
doctors ?
policymakers ?
How many of you are here because they are :
donderdag 5 juli 12
doctors ?
policymakers ?
management ?
How many of you are here because they are :
donderdag 5 juli 12
doctors ?
policymakers ?
management ?
researchers ?
How many of you are here because they are :
donderdag 5 juli 12
doctors ?
policymakers ?
management ?
researchers ?
patients ?
How many of you are here because they are :
donderdag 5 juli 12
donderdag 5 juli 12
Medicine X Stanford
Medicine 2.0 Harvard
TEDMED Wash DC
Doctors 2.0 Paris
TEDxMaastricht
World PD conference
National Health Debate
....
donderdag 5 juli 12
Medicine X Stanford
Medicine 2.0 Harvard
TEDMED Wash DC
Doctors 2.0 Paris
TEDxMaastricht
World PD conference
National Health Debate
....
Radboud REshape & Innovation Center
donderdag 5 juli 12
Health 1.0
Health 2.0
Participatory Medicine
Participatory Healthcare
from Health1 . 0 to Participatory Healthcare
Radboud REshape & Innovation Center
donderdag 5 juli 12
Health 1.0
Health 2.0
Participatory Medicine
Participatory Healthcare
from Health1 . 0 to Participatory Healthcare
Radboud REshape & Innovation Centerfound 46 definitions of Health 2.0
donderdag 5 juli 12
donderdag 5 juli 12
Radboud REshape : dare to dream ... dare to do ... dare to fail ...
donderdag 5 juli 12
Radboud REshape & Innovation Center
Engelen, Derksen 2010
Radboud REshape & Innovation Center
donderdag 5 juli 12
Radboud REshape & Innovation Center
Engelen, Derksen 2010
Radboud REshape & Innovation Center
donderdag 5 juli 12
Shift happening in Media
Radboud REshape & Innovation Center
donderdag 5 juli 12
Shift happening in regimes
Radboud REshape & Innovation Center
donderdag 5 juli 12
Use of SoMe by hospitals in Europe and USA (%)
Youtube Twitter Facebook Linkedin
Preliminary results EUPeriod: Sep 2010 - Feb 2011 *NL FB = HyvesUSA: Data of Ed Bennet www.ebennett.org
Radboud REshape & Innovation Center
donderdag 5 juli 12
Use of SoMe by hospitals in Europe and USA (%)
0
10
20
30
40
50
60
Germany Switzerland Austria Sweden Norway UK Netherlands USA
Youtube Twitter Facebook Linkedin
Preliminary results EUPeriod: Sep 2010 - Feb 2011 *NL FB = HyvesUSA: Data of Ed Bennet www.ebennett.org
Radboud REshape & Innovation Center
donderdag 5 juli 12
Radboud REshape & Innovation Center
donderdag 5 juli 12
Radboud REshape & Innovation Center
donderdag 5 juli 12
Radboud REshape & Innovation Center
donderdag 5 juli 12
Radboud REshape & Innovation Center
donderdag 5 juli 12
Radboud REshape & Innovation Center
donderdag 5 juli 12
Radboud REshape & Innovation Center
donderdag 5 juli 12
Radboud REshape & Innovation Center
donderdag 5 juli 12
Radboud REshape & Innovation Center
donderdag 5 juli 12
Radboud REshape & Innovation Center
donderdag 5 juli 12
Radboud REshape & Innovation Center
donderdag 5 juli 12
Radboud REshape & Innovation Center
donderdag 5 juli 12
Radboud REshape & Innovation Center
donderdag 5 juli 12
Radboud REshape & Innovation Center
donderdag 5 juli 12
Radboud REshape & Innovation Center
donderdag 5 juli 12
donderdag 5 juli 12
Crowdsourcing = outsourcing
donderdag 5 juli 12
Crowdsourcing = outsourcing
Wisdom of the crowds
donderdag 5 juli 12
Crowdsourcing = outsourcing
Wisdom of the crowds
Crowd funding
donderdag 5 juli 12
Radboud REshape & Innovation Center
Ask the crowd for help
donderdag 5 juli 12
Radboud REshape & Innovation Center
donderdag 5 juli 12
Radboud REshape & Innovation Center
donderdag 5 juli 12
Radboud REshape & Innovation Center
donderdag 5 juli 12
Radboud REshape & Innovation Center
Passed 100.000 downloads
17.5000 AED’s in Database
Soon blind spots and geo-send to dispatch
Run by UMC so in-dependent non-commercial
Worldwide coverage
donderdag 5 juli 12
Radboud REshape & Innovation Center
donderdag 5 juli 12
Radboud REshape & Innovation Center
Joined now :
donderdag 5 juli 12
Radboud REshape & Innovation Center
Joined now :
donderdag 5 juli 12
Radboud REshape & Innovation Center
Joined now :
donderdag 5 juli 12
Radboud REshape & Innovation Center
Joined now :
20.000 AED volunteers
actively crowdsourcing
donderdag 5 juli 12
Radboud REshape & Innovation Center
Joined now :
20.000 AED volunteers
actively crowdsourcing
Would LOVE to collaborate i.e. with :
donderdag 5 juli 12
Radboud REshape & Innovation Center
Joined now :
20.000 AED volunteers
actively crowdsourcing
Would LOVE to collaborate i.e. with :
donderdag 5 juli 12
Radboud REshape & Innovation Center
donderdag 5 juli 12
Radboud REshape & Innovation Center
donderdag 5 juli 12
Prof. Dr. Bas BloemConsulting NeurologistRadboud University Medical Centre
Radboud REshape & Innovation Center
donderdag 5 juli 12
Prof. Dr. Bas BloemConsulting NeurologistRadboud University Medical Centre
Radboud REshape & Innovation Center
We’ve asked the help of PD patients :over 50 patient-opinions 321.000 impressions
donderdag 5 juli 12
Prof. Dr. Bas BloemConsulting NeurologistRadboud University Medical Centre
Radboud REshape & Innovation Center
We’ve asked the help of PD patients :over 50 patient-opinions 321.000 impressionswithin 24 hours
donderdag 5 juli 12
www.parkinsonsvoice.org
Radboud REshape & Innovation Center
donderdag 5 juli 12
www.parkinsonsvoice.org
Radboud REshape & Innovation Center
donderdag 5 juli 12
www.parkinsonsvoice.org
Radboud REshape & Innovation Center
co-founder INTEL, Any Grove PD patienthad a lot of data, Max ran algorithmsClaimes now 99% accurate
donderdag 5 juli 12
www.parkinsonsvoice.org
Radboud REshape & Innovation Center
Goal 10.000in 3 days 3.500 recordings Max Little, TED Fellow : [email protected]
co-founder INTEL, Any Grove PD patienthad a lot of data, Max ran algorithmsClaimes now 99% accurate
donderdag 5 juli 12
MyHealthstory.me
Radboud REshape & Innovation Center
donderdag 5 juli 12
MyHealthstory.me
Radboud REshape & Innovation Center
donderdag 5 juli 12
MyHealthstory.me
Radboud REshape & Innovation Center
Dr Roni Zeiger MDa.k.a.
donderdag 5 juli 12
MyHealthstory.me
Radboud REshape & Innovation Center
Dr Roni Zeiger MDa.k.a.
donderdag 5 juli 12
Radboud REshape & Innovation Center
donderdag 5 juli 12
Radboud REshape & Innovation Center
Empower patients
Disrupt healthcare
No add. hardware
Secure
Recording
donderdag 5 juli 12
Neurologist
optionRelative at work
option Physiotherapist other clinic
The Patient is offered virtual hospital visit and or group consult from Multi Disciplinary MS Team
“”
Patient at home
Radboud REshape & Innovation Center
donderdag 5 juli 12
Radboud REshape & Innovation Center
donderdag 5 juli 12
Radboud REshape & Innovation Center
donderdag 5 juli 12
donderdag 5 juli 12
So, we often THINK we
know what our patients
need, want or looking
for, but we DON’T !
donderdag 5 juli 12
Radboud REshape & Innovation Center
donderdag 5 juli 12
Radboud REshape & Innovation Center
CLO
ChiefListeningOf!cer
donderdag 5 juli 12
Radboud REshape & Innovation Center
donderdag 5 juli 12
Radboud REshape & Innovation Center
donderdag 5 juli 12
Radboud REshape & Innovation Center
donderdag 5 juli 12
Radboud REshape & Innovation Center
donderdag 5 juli 12
Radboud REshape & Innovation Center
donderdag 5 juli 12
Radboud REshape & Innovation Center
donderdag 5 juli 12
Radboud REshape & Innovation Center
donderdag 5 juli 12
Radboud REshape & Innovation Center
donderdag 5 juli 12
Radboud REshape & Innovation Center
donderdag 5 juli 12
Radboud REshape & Innovation Center
donderdag 5 juli 12
Radboud REshape & Innovation Center
donderdag 5 juli 12
Radboud REshape & Innovation Center
donderdag 5 juli 12
Radboud REshape & Innovation Center
donderdag 5 juli 12
Radboud REshape & Innovation Center
donderdag 5 juli 12
Radboud REshape & Innovation Center
donderdag 5 juli 12
Radboud REshape & Innovation Center
donderdag 5 juli 12
Radboud REshape & Innovation Center
donderdag 5 juli 12
Radboud REshape & Innovation Center
donderdag 5 juli 12
Radboud REshape & Innovation Center900 people , 3500 waitinglist, 35 locations worldwide
donderdag 5 juli 12
Radboud REshape & Innovation Center
donderdag 5 juli 12
February 4th, 2013Radboud REshape & Innovation Center
donderdag 5 juli 12
Radboud REshape & Innovation Center
donderdag 5 juli 12
Radboud REshape & Innovation Center
donderdag 5 juli 12
donderdag 5 juli 12
www.patienstscrowds.com
donderdag 5 juli 12
www.patienstscrowds.com
crowdfunding for health(care)
donderdag 5 juli 12
www.patienstscrowds.com
crowdfunding for health(care)
organize patients(groups) to design & fund research
donderdag 5 juli 12
www.patienstscrowds.com
crowdfunding for health(care)
organize patients(groups) to design & fund research
non-geographical
donderdag 5 juli 12
donderdag 5 juli 12
Patients are least utilized resources in HC
donderdag 5 juli 12
Patients are least utilized resources in HC
you can’t keep up with speed of technology
donderdag 5 juli 12
Patients are least utilized resources in HC
you can’t keep up with speed of technology
The crowd will change HC dramatically
donderdag 5 juli 12
Building a kind of Swiss Army knife
Radboud REshape & Innovation Center
donderdag 5 juli 12
donderdag 5 juli 12
donderdag 5 juli 12
This is whereall the
magic happens
donderdag 5 juli 12
This is whereall the
magic happensYour
comfortzone
donderdag 5 juli 12
REshape : Dare to dream ... Dare to do ...
Dare to fail ...
donderdag 5 juli 12
REshape : Dare to dream ... Dare to do ...
Dare to fail ...
donderdag 5 juli 12
