Ethical Issues in Social Media in Health

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Ethical Issues in Social Media & Privacy in Health

Nawanan Theera-Ampornpunt, MD, PhDDepartment of Community MedicineFaculty of Medicine Ramathibodi HospitalMahidol University

SlideShare.net/[email protected] 28, 2016

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The Age of User-Generated Content

Time’s Person of the Year 2006:

You

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Thailand Internet User Profile (2016)

• Electronic Transactions Development Agency (Public Organization)

https://www.etda.or.th/publishing-detail/thailand-internet-user-profile-2016-th.html

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Source: ETDA (2016)



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Source: ETDA (2016)



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Source: ETDA (2016)



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Source: ETDA (2016)



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Source: ETDA (2016)



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Let’s look at some social media case studies...

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Social Media Case Study #1

Disclaimer:Presented for Academic

Discussions Only

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Discussions Only

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http://news.mthai.com/hot-news/world-news/453842.html


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http://pantip.com/topic/33678081

https://www.facebook.com/photo.php?fbid=971229119583658&set=a.37957656541558

6.90794.100000897364762&type=1&theater


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http://www.matichon.co.th/news_detail.php?newsid=1429341430


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Discussions Only

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http://manager.co.th/Entertainment/View

News.aspx?NewsID=9580000076405


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Real Message on

• "อาจารย์ครับ เมื่อวาน ผมออก OPD เจอ คุณ... คนไข้... ที่อาจารย์ผ่าไปแล้ว มา ฉายรังสีต่อที่... ตอนนี้ Happy ดี ไม่ค่อยปวด เดินได้สบาย คนไข้ฝากขอบคุณอาจารย์อีกครั้ง -- อีกอย่างคนไข้ช่วงนี้ไม่ค่อยสะดวกเลยไม่ได้ไป กทม. บอกว่าถ้าพร้อมจะไป Follow-up กับอาจารย์ครับ"

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Discussions Only

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Source: Facebook Page โหดสัส V2 อ้างอิงภาพจากหน้า 7 นสพ.ไทยรัฐ วันท่ี 6 พ.ค. 2557 และ http://www.reuters.com/article/2013/10/16/us-philippines-quake-idUSBRE99E01R20131016

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From a forwarded message in “LINE” in

early July, 2015

Social Media Case Study #11: Online Consultation

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Social Media Case Study #12: Hoaxes - PR Nightmare & Response

http://new.khaosod.co.th.khaosod.online/dek3/win.html (อันตราย! ไม่ควรเข้าเว็บนี้)

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Social Media Case Study #12: Hoaxes - PR Nightmare & Response

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http://www.thairath.co.th/content/413776

Social Media Best Practice Resources

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http://www.doctorcpr.com/blog/5-things-

doctors-should-never-post-on-social-

media/

Social Media Best Practice Resources

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Risks of Social Media

• Blurring lines between personal & professional lives

• Work-life balance

• Inappropriate & unprofessional conduct

• False/misleading information

• Limitations & liability of online consultations

• Privacy risks

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How Line Chats Can Violate Patient’s Privacy?

• Multiple viewers in a Line group• Ability to capture screens or forward• Posts in the wrong groups• Cached data• Unencrypted transmission (latest news: encrypted)• Admin access to data in Line’s server• Password Discovery

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http://sport.sanook.com/84101/น้องก้อย-โค้ชเช-จบยาก-อ.พิทักษ์-ขุดไลน์ปริศนาให้นักข่าวเผยแพร่/

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Since social media come with risks• Should people stop using it?• Should CIO ban its use by

employees?

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Maslow's Hierarchy of Needs

Image Source: http://en.wikipedia.org/wiki/Maslow's_hierarchy_of_needs

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Why People Use Social Media?

• To seek & to share information/knowledge• To seek & to share valued opinion• To seek & to give friendship/relationship• To seek & to give mental support, respect, love,

acceptance

• In simplest terms: To “socialize”

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Some Social Media in Healthcare: PatientsLikeMe

PatientsLikeMe.com

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Some Social Media in Healthcare: CaringBridge

CaringBridge.org

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Why People Use Social Media in Healthcare?

• To seek & to share health information/knowledge– Information asymmetry in healthcare– Information could be general or personalized

• To seek & to share health-related valued opinion• To seek & to give friendship/relationship• To seek & to give mental support, respect, love,

acceptance during medical journeys• To consult/socialize/give support among colleagues

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• Richard Davies deBronkart Jr.

• Cancer survivor & blogger

• Found proper cancer treatment through online social network after diagnosis

• Activist for participatory medicine & patient engagement through information technology

Meet E-Patient Dave

http://www.epatientdave.com/

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• Not “Electronic” Patient

• Engaged

• Equipped

• Empowered

• Educated

• Enlightened

• Etc.

Dave’s E-Patient Definition

From Dr. Danny Sands’ tutorial presentation at AMIA2013

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So... How should we use social media in healthcare as

health professionals?

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• Technical solutions– Restrict use of social media

– Secure platform

– “Secure messaging” applications

• Management solutions– Organizational social media policy & enforcement

– User awareness training

– Organizational culture & best practices

Solutions for Proper Social Media Use in Healthcare

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Organizational Policy on Social Media

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Social Media Guidelines for Health Practitioners Drafting Project

For National Health Commission

Nawanan Theera-Ampornpunt

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• Continuous Professionalism

• Pausing Before Posting

• Professional Online Behaviors

• Privacy Settings and Separating Personal and Professional Information

• Professional Boundaries with Patients and Others

• Respecting Privacy

Social Media Guidelines for Health Practitioners

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• Non-Advertising

• Full Disclosure

• Self-Identification

• Avoiding Misrepresentation

• Fact Checking before Sharing

• Cautious Practice for Online Consultation

Social Media Guidelines for Health Practitioners