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by Malaysia Lysosomal Diseases Association
Why is formed?
The Miracle of
MYOZYME
8
22
15
6 1
3
4
1
0
5
10
15
20
25
30
35
Female Male
Malay Chinese Indian Lain-lain
22
32
38
42 45
60
2011 2012 2013 2014 2015 2016
2011 2012 2013 2014 2015 2016
Patients Count Ethnicity and Gender Distribution
1 Muhamad Shapingi bin Hashim Sunsidising 200.00
2 Salbiah binti Mohd. Razali Sunsidising 400.00
3 Subaramaniam A/L Nagappan Sunsidising 200.00
4 Paezah binti Awang Puteh Sunsidising 200.00
5 Bong Siaw Fui Sunsidising 400.00
6 Norhaiwati binti Che Wil Sunsidising 200.00
7 Sunarti binti Che Wil Sunsidising 400.00
8 Faizal bin Sait Sunsidising 200.00
9 Nur Nadia Bt Shamsudin Sunsidising 200.00
10 Jussena Ata Ak Jaboh Sunsidising 360.00
11 Mohd Najmudin bin Yasok Sunsidising 200.00
Total RM 2,960.00
RM 17,760 per year USD 4,200
M
E
2013 Osaka
2014 Malaysia Charity Dinner
E
24
8 2
6
7
7
5 Initially ReceivedTreatment
Waiting for Treatment
Going To Start Trial
Late/No TreatmentAvailable
Treatment Ending Soon
Passed Away
Under Trial
Patient Treatment Status
To fight for the children is a long journey Until we get to know about ConNGO You are the light at the end of the tunnel for us Today is a beautiful day because Love travel 15,106KM away and unite us together Let’s not leave anyone behind…
