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www.medicalhomeportal.org A National Resource for Pediatricians and Parents Caring for CSHCN Chuck Norlin, MD Lynne Kerr, MD, PhD Al Romeo, RN, PhD

Www.medicalhomeportal.org A National Resource for Pediatricians and Parents Caring for CSHCN Chuck Norlin, MD Lynne Kerr, MD, PhD Al Romeo, RN, PhD

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Page 1: Www.medicalhomeportal.org A National Resource for Pediatricians and Parents Caring for CSHCN Chuck Norlin, MD Lynne Kerr, MD, PhD Al Romeo, RN, PhD

www.medicalhomeportal.org

A National Resource for Pediatricians and Parents Caring

for CSHCN

Chuck Norlin, MD

Lynne Kerr, MD, PhD

Al Romeo, RN, PhD

Page 2: Www.medicalhomeportal.org A National Resource for Pediatricians and Parents Caring for CSHCN Chuck Norlin, MD Lynne Kerr, MD, PhD Al Romeo, RN, PhD

www.medicalhomeportal.org

I have no financial interests to disclose

Page 3: Www.medicalhomeportal.org A National Resource for Pediatricians and Parents Caring for CSHCN Chuck Norlin, MD Lynne Kerr, MD, PhD Al Romeo, RN, PhD

To describe a web-based resource to support you, your patients, and their families in

the medical home

Page 4: Www.medicalhomeportal.org A National Resource for Pediatricians and Parents Caring for CSHCN Chuck Norlin, MD Lynne Kerr, MD, PhD Al Romeo, RN, PhD

Just another day at the office (in Utah and, hopefully soon, beyond)…

Page 5: Www.medicalhomeportal.org A National Resource for Pediatricians and Parents Caring for CSHCN Chuck Norlin, MD Lynne Kerr, MD, PhD Al Romeo, RN, PhD

Ramone, your five-year old patient with Prader-Willi syndrome, vomited twice this morning but doesn't really look sick. Should we see him today?

Page 6: Www.medicalhomeportal.org A National Resource for Pediatricians and Parents Caring for CSHCN Chuck Norlin, MD Lynne Kerr, MD, PhD Al Romeo, RN, PhD

The health department called about Jessica, a 5-day old with a positive newborn screen for methylmalonic acidemia. Now what do we do?

Page 7: Www.medicalhomeportal.org A National Resource for Pediatricians and Parents Caring for CSHCN Chuck Norlin, MD Lynne Kerr, MD, PhD Al Romeo, RN, PhD

Your first patient, a 5 year old, is new to the practice, coming in for a well child check and the schedule says he has fragile X. Is there anything special you should know or do?

Page 8: Www.medicalhomeportal.org A National Resource for Pediatricians and Parents Caring for CSHCN Chuck Norlin, MD Lynne Kerr, MD, PhD Al Romeo, RN, PhD

Juanita, is here with her son who was recently diagnosed with autism. Having read a lot of confusing stuff on the web, she wants to know how to find reliable information about the diagnosis, planning for his schooling, and how to help his siblings deal with this.

Page 9: Www.medicalhomeportal.org A National Resource for Pediatricians and Parents Caring for CSHCN Chuck Norlin, MD Lynne Kerr, MD, PhD Al Romeo, RN, PhD

After a long hospital stay, Tiffany just went home with a new tracheostomy and the home care company wants orders and a letter to support the need for an in-line humidifier.

Page 10: Www.medicalhomeportal.org A National Resource for Pediatricians and Parents Caring for CSHCN Chuck Norlin, MD Lynne Kerr, MD, PhD Al Romeo, RN, PhD
Page 11: Www.medicalhomeportal.org A National Resource for Pediatricians and Parents Caring for CSHCN Chuck Norlin, MD Lynne Kerr, MD, PhD Al Romeo, RN, PhD
Page 12: Www.medicalhomeportal.org A National Resource for Pediatricians and Parents Caring for CSHCN Chuck Norlin, MD Lynne Kerr, MD, PhD Al Romeo, RN, PhD
Page 13: Www.medicalhomeportal.org A National Resource for Pediatricians and Parents Caring for CSHCN Chuck Norlin, MD Lynne Kerr, MD, PhD Al Romeo, RN, PhD
Page 14: Www.medicalhomeportal.org A National Resource for Pediatricians and Parents Caring for CSHCN Chuck Norlin, MD Lynne Kerr, MD, PhD Al Romeo, RN, PhD

Ramone, your five-year old patient with Prader-Willi syndrome, vomited twice this morning but doesn't really look sick. Should we see him today?

Page 15: Www.medicalhomeportal.org A National Resource for Pediatricians and Parents Caring for CSHCN Chuck Norlin, MD Lynne Kerr, MD, PhD Al Romeo, RN, PhD
Page 16: Www.medicalhomeportal.org A National Resource for Pediatricians and Parents Caring for CSHCN Chuck Norlin, MD Lynne Kerr, MD, PhD Al Romeo, RN, PhD
Page 17: Www.medicalhomeportal.org A National Resource for Pediatricians and Parents Caring for CSHCN Chuck Norlin, MD Lynne Kerr, MD, PhD Al Romeo, RN, PhD
Page 18: Www.medicalhomeportal.org A National Resource for Pediatricians and Parents Caring for CSHCN Chuck Norlin, MD Lynne Kerr, MD, PhD Al Romeo, RN, PhD
Page 19: Www.medicalhomeportal.org A National Resource for Pediatricians and Parents Caring for CSHCN Chuck Norlin, MD Lynne Kerr, MD, PhD Al Romeo, RN, PhD
Page 20: Www.medicalhomeportal.org A National Resource for Pediatricians and Parents Caring for CSHCN Chuck Norlin, MD Lynne Kerr, MD, PhD Al Romeo, RN, PhD
Page 21: Www.medicalhomeportal.org A National Resource for Pediatricians and Parents Caring for CSHCN Chuck Norlin, MD Lynne Kerr, MD, PhD Al Romeo, RN, PhD

The health department called about Jessica, a 5-day old with a positive newborn screen for methylmalonic acidemia. Now what do we do?

Page 22: Www.medicalhomeportal.org A National Resource for Pediatricians and Parents Caring for CSHCN Chuck Norlin, MD Lynne Kerr, MD, PhD Al Romeo, RN, PhD
Page 23: Www.medicalhomeportal.org A National Resource for Pediatricians and Parents Caring for CSHCN Chuck Norlin, MD Lynne Kerr, MD, PhD Al Romeo, RN, PhD
Page 24: Www.medicalhomeportal.org A National Resource for Pediatricians and Parents Caring for CSHCN Chuck Norlin, MD Lynne Kerr, MD, PhD Al Romeo, RN, PhD
Page 25: Www.medicalhomeportal.org A National Resource for Pediatricians and Parents Caring for CSHCN Chuck Norlin, MD Lynne Kerr, MD, PhD Al Romeo, RN, PhD
Page 26: Www.medicalhomeportal.org A National Resource for Pediatricians and Parents Caring for CSHCN Chuck Norlin, MD Lynne Kerr, MD, PhD Al Romeo, RN, PhD
Page 27: Www.medicalhomeportal.org A National Resource for Pediatricians and Parents Caring for CSHCN Chuck Norlin, MD Lynne Kerr, MD, PhD Al Romeo, RN, PhD
Page 28: Www.medicalhomeportal.org A National Resource for Pediatricians and Parents Caring for CSHCN Chuck Norlin, MD Lynne Kerr, MD, PhD Al Romeo, RN, PhD
Page 29: Www.medicalhomeportal.org A National Resource for Pediatricians and Parents Caring for CSHCN Chuck Norlin, MD Lynne Kerr, MD, PhD Al Romeo, RN, PhD
Page 30: Www.medicalhomeportal.org A National Resource for Pediatricians and Parents Caring for CSHCN Chuck Norlin, MD Lynne Kerr, MD, PhD Al Romeo, RN, PhD
Page 31: Www.medicalhomeportal.org A National Resource for Pediatricians and Parents Caring for CSHCN Chuck Norlin, MD Lynne Kerr, MD, PhD Al Romeo, RN, PhD

Your first patient, a 5 year old, is new to the practice, coming in for a well child check and the schedule says he has fragile X. Is there anything special you should know or do?

Page 32: Www.medicalhomeportal.org A National Resource for Pediatricians and Parents Caring for CSHCN Chuck Norlin, MD Lynne Kerr, MD, PhD Al Romeo, RN, PhD
Page 33: Www.medicalhomeportal.org A National Resource for Pediatricians and Parents Caring for CSHCN Chuck Norlin, MD Lynne Kerr, MD, PhD Al Romeo, RN, PhD
Page 34: Www.medicalhomeportal.org A National Resource for Pediatricians and Parents Caring for CSHCN Chuck Norlin, MD Lynne Kerr, MD, PhD Al Romeo, RN, PhD
Page 35: Www.medicalhomeportal.org A National Resource for Pediatricians and Parents Caring for CSHCN Chuck Norlin, MD Lynne Kerr, MD, PhD Al Romeo, RN, PhD

Juanita, is here with her son who was recently diagnosed with autism. Having read a lot of confusing stuff on the web, she wants to know how to find reliable information about the diagnosis, planning for his schooling, and how to help his siblings deal with this.

Page 36: Www.medicalhomeportal.org A National Resource for Pediatricians and Parents Caring for CSHCN Chuck Norlin, MD Lynne Kerr, MD, PhD Al Romeo, RN, PhD
Page 37: Www.medicalhomeportal.org A National Resource for Pediatricians and Parents Caring for CSHCN Chuck Norlin, MD Lynne Kerr, MD, PhD Al Romeo, RN, PhD
Page 38: Www.medicalhomeportal.org A National Resource for Pediatricians and Parents Caring for CSHCN Chuck Norlin, MD Lynne Kerr, MD, PhD Al Romeo, RN, PhD
Page 39: Www.medicalhomeportal.org A National Resource for Pediatricians and Parents Caring for CSHCN Chuck Norlin, MD Lynne Kerr, MD, PhD Al Romeo, RN, PhD
Page 40: Www.medicalhomeportal.org A National Resource for Pediatricians and Parents Caring for CSHCN Chuck Norlin, MD Lynne Kerr, MD, PhD Al Romeo, RN, PhD
Page 41: Www.medicalhomeportal.org A National Resource for Pediatricians and Parents Caring for CSHCN Chuck Norlin, MD Lynne Kerr, MD, PhD Al Romeo, RN, PhD

After a long hospital stay, Tiffany just went home with a new tracheostomy and the home care company wants orders and a letter to support the need for an in-line humidifier.

Page 42: Www.medicalhomeportal.org A National Resource for Pediatricians and Parents Caring for CSHCN Chuck Norlin, MD Lynne Kerr, MD, PhD Al Romeo, RN, PhD
Page 43: Www.medicalhomeportal.org A National Resource for Pediatricians and Parents Caring for CSHCN Chuck Norlin, MD Lynne Kerr, MD, PhD Al Romeo, RN, PhD
Page 44: Www.medicalhomeportal.org A National Resource for Pediatricians and Parents Caring for CSHCN Chuck Norlin, MD Lynne Kerr, MD, PhD Al Romeo, RN, PhD
Page 45: Www.medicalhomeportal.org A National Resource for Pediatricians and Parents Caring for CSHCN Chuck Norlin, MD Lynne Kerr, MD, PhD Al Romeo, RN, PhD
Page 46: Www.medicalhomeportal.org A National Resource for Pediatricians and Parents Caring for CSHCN Chuck Norlin, MD Lynne Kerr, MD, PhD Al Romeo, RN, PhD
Page 47: Www.medicalhomeportal.org A National Resource for Pediatricians and Parents Caring for CSHCN Chuck Norlin, MD Lynne Kerr, MD, PhD Al Romeo, RN, PhD
Page 48: Www.medicalhomeportal.org A National Resource for Pediatricians and Parents Caring for CSHCN Chuck Norlin, MD Lynne Kerr, MD, PhD Al Romeo, RN, PhD
Page 49: Www.medicalhomeportal.org A National Resource for Pediatricians and Parents Caring for CSHCN Chuck Norlin, MD Lynne Kerr, MD, PhD Al Romeo, RN, PhD
Page 50: Www.medicalhomeportal.org A National Resource for Pediatricians and Parents Caring for CSHCN Chuck Norlin, MD Lynne Kerr, MD, PhD Al Romeo, RN, PhD
Page 51: Www.medicalhomeportal.org A National Resource for Pediatricians and Parents Caring for CSHCN Chuck Norlin, MD Lynne Kerr, MD, PhD Al Romeo, RN, PhD
Page 52: Www.medicalhomeportal.org A National Resource for Pediatricians and Parents Caring for CSHCN Chuck Norlin, MD Lynne Kerr, MD, PhD Al Romeo, RN, PhD
Page 53: Www.medicalhomeportal.org A National Resource for Pediatricians and Parents Caring for CSHCN Chuck Norlin, MD Lynne Kerr, MD, PhD Al Romeo, RN, PhD
Page 54: Www.medicalhomeportal.org A National Resource for Pediatricians and Parents Caring for CSHCN Chuck Norlin, MD Lynne Kerr, MD, PhD Al Romeo, RN, PhD
Page 55: Www.medicalhomeportal.org A National Resource for Pediatricians and Parents Caring for CSHCN Chuck Norlin, MD Lynne Kerr, MD, PhD Al Romeo, RN, PhD

Wanted

Users

Feedback and Ideas

Partners in other states/regions

Authors

Reviewers

Page 56: Www.medicalhomeportal.org A National Resource for Pediatricians and Parents Caring for CSHCN Chuck Norlin, MD Lynne Kerr, MD, PhD Al Romeo, RN, PhD

[email protected]

Supported by the National Library of Medicine#G08 LM007680-01A2 (3/2006-2/2009)


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