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Genetic Diseases
• Achonddroplasia (Dwarfism)• Adrenoleukodystrophy• Albinism• Autosomal Recessive Polycyst
ic Kidney Disease• Cystic Fibrosis• Duchenne Muscular Dystrophy• Hemophilia• Hereditary Breast Cancer• Hereditary non-polyposis color
ectal cancer• Hunter Syndrome• Huntington’s Disease
• Krabbe’s Disease• Long QT Syndrome• Marfan Syndrome• Myotonic Dystrophy• Neurofibromatosis• Osteogenesis Imperfecta• Phenylketonuria• Prader-Willi Syndrome• Retinitis Pigmentosa• Scprintzen syndrome• Sickle Cell Anemia• Tay Sachs• Usher Syndrome• Waardenburg Syndrome• Frederichs Ataxia
Achondroplasia (Dwarfism)• Associations
– Little People of America
– Human Growth Foundation
– March of Dimes
• Books– Human Diseases and Conditions
– Diseases
– World of Health
• Resource File (a folder of information gathered from the Public Library’s database)
• Web pages– Short Stature
– Mayo Clinic
– MedLine Plus
– Web MD
Adrenoleukodystrophy
• Associations– The ARC of the United Stat
es– Australian Leukodystrophy
Group– CLIMB– ELA– Fight ALD– NIH Office of Rare Disease
s– United Leukodystrophy Fo
undation• )
• Resource File (a folder of information gathered from the Public Library’s database
• Books– World of Health
• Web pages– MedLine Plus– Leukodystrophy types– Mayo Clinic
Albinism
• Associations– NOAH
• Books– Diseases
– World of Health
– Human Diseases and Conditions
• Resource Files (a file of articles from the public library’s database)• Web pages
– MedLine plus
– Mayo Clinic
– Scientific American
– National Institutes of Health
Asthma
• Associations– Asthma and Allergy Found
ation of America– American Lung Association– American Academy of Aller
gy, Asthma, and Immunology
• Books– World of Health– Diseases– Sick– Coping with Asthma– Human Diseases and
Conditions
• Resource File (a folder of information from the public library’s database)
• Web Sites– National Heart Blood and Lun
g Institute
– MedLine Plus
– Web MD
– CDC
– Mayo Clinic
Autosomal Recessive Polycystic Kidney Disease
• Associations– ARPKD / CHF Alliance– CAGS– Rare Diseases organization
• Books– World of Health– Diseases– Kidney Disorders– Human Diseases and Conditions
• Resource File (a folder of information from the public library’s database)
• Web sites:– National Institutes of Health– NIH– Web MD
Cystic Fibrosis• Associations
– Cystic Fibrosis Foundation– Boomer Esiason Foundatio
n– Kids Health– Canadian Cystic Fibrosis F
oundation• Books
– World of Health– Diseases– Sick– Genetics and Human
Health– Human Diseases and
Conditions
• Web sites– Medline– Mayo Clinic– National Heart lung and Blo
od Institute– Genetics Home Reference
• Resource File (a folder of information from the public library’s database)
Duchenne Muscular Dystrophy
• Organizations– Muscular Dystrophy Association
– Parent Project Muscular Dystrophy
– Your Genes your health
• Books– World of Health
– Diseases
– Sick
– Human Diseases and Conditions
• Resource File (a folder of information from the public library’s database)
• Web Sites– Medline Plus CDC Mayo Clinic
– National Institute of Neurological Disorders and Stroke
Hemophilia
• Associations– National Hemophilia Organ
ization– Bleeding Disorders Associ
ation– Hemophilia Organization of
America• Books
– World of Health
– Diseases
– Sick
– Human Diseases and Conditions
– Genetics and Human Health
• Resource File (a folder of information from the public library’s database)
• Web Sites– Medline Plus
– National Heart lung and blood Institute
– Mayo Clinic
– E Medicine
Hereditary Breast Cancer
• Associations– National Breast Cancer Fo
undation– American Cancer Society– Susan G. Komen
• Books– World of Health– Diseases– Sick– Breast Cancer– The Cancer Dictionary
• Web Sites– National Cancer Institute
– Medicine Net
– Web MD
– Mayo Clinic
• Resource File (a folder of information from the public library’s database)
Hereditary non-polyposis colorectal cancer
• Organizations– Colon Cancer Alliance
– Colorectal Cancer Network
– Hereditary Colon Cancer Association
• Books– World of Health
– Sick
– The Cancer Dictionary
– Human Diseases and Conditons
• Resource File (a folder of information from the public library’s database)
• Web Sites– Cleveland Clinic National Institutes of Health
– National Cancer Institute Web MD Mayo Clinic
Hunter Syndrome
• Organizations– Rare Diseases
– Brave Community
• Resource File (a folder of information from the public library’s database)
• Web Sites– A list of links
– Mayo Clinic
– Medline Plus
– Web MD
– Shire
Huntington’s Disease• Organizations
– Hereditary Disease Foundation– Huntington’s Disease Society of America– National Institute of Neurological Disorders and Stroke
• Books– World of Health– Disease– Human Diseases and Conditions
• Resource File (a folder of information from the public library’s database)
• Web Sites– Mayo Clinic– Medline Plus– NCBI– Web MD
Krabbe’s Disease
• Organizations– United Leukodystrophy Foundation– Hunter’s Hope Foundation– National Organization for Rare Disorders
• Resource File (a folder of information from the public library’s database)
• Web Sites– Mayo Clinic
– Medline Plus
– National Institute of Neurological Disorders and Stroke
– University of Maryland Medical Center
Long QT Syndrome
• Organizations– CARE
– American Heart Association
– Heart rhythm Society
• Resource File (a folder of information from the public library’s database)
• Web sites– Mayo Clinic
– Cleveland Clinic
– National Heart Lung and Blood Institute
Marfan Syndrome
• Organizations– National Marfan Foundation
– A list of Associations from around the world
• Books– Diseases
– Human Diseases and Conditions
• Resource File (a folder of information from the public library’s database)
• Web sites– Mayo Clinic
– Medline Plus
– Web MD
Myotonic Dystrophy
• Organizations– Muscular Dystrophy Association
– Mytonic Dystrophy Foundation
• Books– World of Health
– Diseases
– Sick
– Human Diseases and Conditions
• Resource File (a folder of information from the public library’s database)
• Web sites– Genetics Home Reference
– Mayo Clinic
– NCBI
Neurofibromatosis
• Organizations– Acoustic Neuroma Association
– Acoustic Neuroma Association of Canada
• Books– World of Health
– Human Diseases and Conditions
• Resource File (a folder of information from the public library’s database)
• Web Sites– National Institute for Neurological Disorders and Stroke
– Kids Health
– Medline Plus
– Mayo Clinic
Osteogenesis Imperfecta
• Organizations– Children’s Brittle Bone Foundation
• Resource File (a folder of information from the public library’s database)
• Books– World of Health
– Diseases (Look under bone diseases)
• Web Sites– Medline Plus
– Web MD
– Net Doctor
– University of Maryland Medical Center
Phenylketonuria
• Resource File (a folder of information from the public library’s database)
• Books– World of Health
– Human Diseases and Conditions
• Web Sites– Mayo Clinic
– Medline Plus
– Web MD
– Rare Diseases
Prader-Willi Syndrome
• Resource File (a folder of information from the public library’s database)
• Organizations– Prader-Willi Association
• Books– World of Health
• Web sites– Medline Plus
– University of Michigan
– Mayo Clinic
– Rare Diseases
Retinitis Pigmentosa
• Resource File (a folder of information from the public library’s database)
• Organizations– Foundation Fighting Blindness
– Low Vision Organization
– American Optometric Association
• Books– World of Health
– Diseases
• Web Sites– Medline Plus
– Web MD
– Natural Eye Care
Shprintzen Syndrome
• Resource File (a folder of information from the public library’s database)
• Organizations– Coalition for Heritable Disorders of Connective Tissue
– Hydrocephalus Association
• Web sites– Genetics Home Reference
– CCDD
– Web MD
Sickle Cell Anemia
• Resource File (a folder of information from the public library’s database)
• Organizations– Sickle Cell Disease Association
– Sickle Cell Information Center
• Books– Sickle Cell Anemia
– Sick
– Diseases
– World of Health
– Human Diseases and Conditions
• Web Sites– Mayo Clinic Medline Plus Web MD
– Kids Health CDC
Tay Sachs
• Resource File (a folder of information from the public library’s database)
• Organizations– National Institute of Neurological Disorders and Stroke
– National Tay Sachs and Allied Diseases
– Rare Diseases
• Books– Diseases
– World of Health
– Human Diseases and Conditions
• Web sites– Genetics Home Reference
– Mayo Clinic
– Medline Plus
Usher Syndrome
• Resource File (a folder of information from the public library’s database)
• Organizations– Usher Syndrome Foundation
– American Council of the Blind
– Foundation Fighting Blindness
– Helen Keller National Center for Deaf-Blind youths and Adults
• Web Sites– NIDCD
– Genetics Home Reference
– National Institutes for Health
– Web MD
Waardenburg Syndrome
• Resource File (a folder of information from the public library’s database)
• Organizations– National Organization of Rare Diseases
• Web Sites– Medline Plus– Web MD– Rare diseases