Sex in the City Is Not Just A Miami Vicepediatrics.med.miami.edu/documents/Sexuality_Marcia_Braden.pdfSusan Heighway and Susan Kidd Webster, 1998. STARS 2 for Children: A Guidebook

Sex

in

th

e C

ity

Is N

ot

Just

A M

iam

i V

ice

Mar

cia

L. B

rade

n, P

h.D

.w

ww

.mar

ciab

rade

n.co

mBr

enda

Fin

ucan

e, M

S, C

GC

ww

w.el

wyn

gene

tics.o

rg

Satu

rday,

Ju

ly 2

8,

2012

2:0

0 –

3:1

5 P

M

Downloaded from nfxf.conferencespot.org

They

hav

e no

inte

rest

in se

xA

dults

with

ID a

re “

inno

cent

” an

d do

n’t e

ven

know

wha

t sex

isA

s a le

gal g

uard

ian, I

hav

e th

e rig

ht to

mak

e d

ecisi

ons a

bout

se

xuali

ty, c

ontra

cept

ion,

and

repr

oduc

tion

for m

y ad

ult

son

or d

augh

ter

Adu

lt se

rvic

e ag

enci

es re

stric

t sex

ual a

ctiv

ity a

mon

g ho

usem

ates

, co-

wor

kers

with

IDPe

ople

with

ID c

anno

t und

erst

and

and

don’

t nee

d se

x ed

ucat

ion

CO

MM

ON

MY

TH

S A

BO

UT

SE

XU

AL

ITY

IN

PE

OP

LE

WIT

H I

NT

EL

LE

CT

UA

L D

ISA

BIL

ITY

(ID

)

Bre

nda

Finu

cane

, MS

, CG

CDownloaded from nfxf.conferencespot.org

Frag

ile X

is a

n in

herit

ed c

ondi

tion

Gen

etic

issu

es in

add

ition

to g

ener

al co

ncer

ns a

bout

pre

gnan

cy

in fe

male

s with

ID

Pote

ntial

for m

ultip

le fa

mily

mem

bers

to b

e af

fect

ed b

y ID

, in

crea

sing

poss

ibili

ty o

f ina

ppro

priat

e se

xual

inte

ract

ions

be

twee

n sib

lings

, oth

er re

lativ

es

SP

EC

IAL

CO

NS

IDE

RA

TIO

NS

RE

LA

TE

D T

O F

RA

GIL

E X

SY

ND

RO

ME

Bre

nda

Finu

cane

, MS

, CG

C


Invo

lunt

ary

ster

iliza

tion:

Buc

k v

Bell

(192

7)

Civi

l Rig

hts A

ct o

f 196

5–

Prot

ectio

n of

mar

riage

and

pro

crea

tion

as e

ssen

tial e

lemen

ts

of ri

ght t

o pr

ivac

y

Am

eric

ans w

ith D

isabi

litie

s Act

(199

0)–

Incr

ease

d pr

otec

tions

for p

eopl

e w

ith d

isabi

litie

s

Pres

umpt

ion

of C

ompe

tenc

y –

Indi

vidu

als a

re p

resu

med

to b

e co

mpe

tent

unl

ess p

rove

n ot

herw

ise

LE

GA

LIS

SU

ES

Bre

nda

Finu

cane

, MS

, CG


Ele

men

ts o

f Com

pete

ncy

–K

now

ledg

e: a

ble

to id

entif

y th

e im

porta

nt a

spec

ts o

f a

deci

sion

–U

nder

stan

ding

: evi

denc

e th

at th

e kn

owle

dge

is co

mpr

ehen

ded,

incl

udin

g m

oral

and

phys

ical

cons

eque

nces

–V

olun

tarin

ess:

lack

of c

oerc

ion

LE

GA

LIS

SU

ES

Bre

nda

Finu

cane

, MS

, CG

C


Lega

l Gua

rdian

ship

–A

ssig

ned

by th

e co

urts

–Si

tuat

ion-

spec

ific

(fina

ncial

, med

ical)

–D

oes n

ot c

over

issu

es o

f priv

acy,

inclu

ding

sexu

al co

nsen

t, re

prod

uctiv

e de

cisio

n-m

akin

g, c

onse

nt fo

r pr

enat

al te

stin

g

–G

uard

ian m

ust p

etiti

on c

ourt

for s

pecif

ic sit

uatio

n;

prec

eden

t cas

es h

ave

deni

ed in

volu

ntar

y st

erili

zatio

n

LE

GA

L I

SS

UE

S

Bre

nda

Finu

cane

, MS

, CG


Exa

mpl

e: Co

nsid

erat

ions

to b

e re

view

ed b

y th

e co

urt i

n th

e ca

se o

f inv

olun

tary

ster

iliza

tion

of a

n ad

ult d

augh

ter w

ith

inte

llect

ual d

isabi

lity:

–D

augh

ter’s

cha

nce

to b

ecom

e co

mpe

tent

in th

e fu

ture

?

–W

ould

birt

h co

ntro

l suf

fice

inst

ead

of st

erili

zato

n?

–Is

ster

iliza

tion

in th

e da

ught

er’s

best

inte

rest

? Or i

s it

for t

he fa

mily

’s/ c

omm

unity

’s co

nven

ienc

e?

–Po

ssib

ility

of t

raum

a/ p

sych

olog

ical

dam

age

if da

ught

er b

ecom

es p

regn

ant v

trau

ma/

dam

age

from

st

erili

zatio

n op

erat

ion?

LE

GA

LIS

SU

ES

Bre

nda

Finu

cane

,MS

, CG


–Li

kelih

ood

that

dau

ghte

r will

vol

unta

rily

enga

ge in

sexu

al ac

tivity

, or t

hat s

exua

l int

erco

urse

will

be

impo

sed

on h

er?

–In

abili

ty o

f dau

ghte

r to

unde

rsta

nd re

prod

uctio

n/

cont

race

ptio

n, a

nd li

kely

per

man

ence

of t

his i

ntel

lect

ual

inab

ility

?

–Li

kelih

ood

of sc

ient

ific/

med

ical

adva

nces

with

in fo

rese

eabl

e fu

ture

that

will

impr

ove

the

daug

hter

’s co

nditi

on, o

r les

s dr

astic

ster

iliza

tion

proc

edur

es w

ould

be

avail

able

?

LE

GA

LIS

SU

ES

Bre

nda

Finu

cane

, MS

, CG

C


Kn

ow

led

ge +

Un

ders

tan

din

g +

Vo

lun

tari

ness

=

Info

rmed

Co

nse

nt

Bre

nda

Finu

cane

, MS

, CG


Occ

urre

nce

–Pe

ople

with

inte

llect

ual a

re 1

.5 ti

mes

mor

e lik

ely

than

pee

rs to

be

sexu

ally

abus

ed

–83

% o

f vict

ims w

ith D

D a

re fe

male

–

17%

of v

ictim

s with

DD

are

male

Who

are

the

abus

ers?

–Ca

regi

vers

! Onl

y 6%

are

stra

nger

s

SE

XU

AL

AB

US

E

Bre

nda

Finu

cane

, MS

, CG


Why

do

they

abu

se?

–Ph

ysic

ally

attra

cted

to c

hild

ren

–Po

wer

–

Stre

ss (l

oss o

f job

, div

orce

, etc

.) –

Redu

ced

risk

of b

eing

caug

ht/

oppo

rtuni

ty

–Ju

stifi

catio

n (“

they

wan

t / n

eed

sex”

)

SE

XU

AL

AB

US

E

Bre

nda

Finu

cane

, MS

, CG

C


Wha

t do

I tea

ch m

y so

n or

dau

ghte

r?–

Pers

onal

safe

ty a

nd re

sista

nce

(how

to sa

y “N

O”)

–O

K to

uch

vers

us “

uh o

h” to

uch

–“M

y bo

dy b

elon

gs to

me.

Nob

ody

touc

hes i

t unl

ess I

wan

t th

em to

, and

if it

won

’t ca

use

any

troub

le.”

–Pr

oper

term

s for

bod

y pa

rts (a

ssist

s in

unde

rsta

ndin

g re

ports

)

–“T

ouch

ing”

secr

ets a

re n

ot O

K!”

–Fa

mily

priv

acy

boun

darie

s

–W

hen

thre

aten

ed, w

ho d

o I t

ell?

SE

XU

AL

AB

US

E

Bre

nda

Finu

cane

, MS

, CG


–“H

ow c

an I

tell

whe

ther

my

son

or d

augh

ter h

as b

een

sexu

ally

abus

ed?”

–“I

don

’t w

ant m

y ad

ult s

on o

r dau

ghte

r with

SM

S to

be

invo

lved

in a

sexu

al re

latio

nshi

p.”

–“M

y so

n’s /

dau

ghte

r’s fr

eque

nt m

astu

rbat

ion

is up

setti

ng to

our

fam

ily.”

–“I

’m a

fraid

my

teen

’s he

ight

ened

sexu

al in

tere

st w

ill g

et

him

into

trou

ble

if he

says

or d

oes s

omet

hing

in

appr

opria

te!”

DIL

EM

MA

S

Bre

nda

Finu

cane

, MS

, CG

C


TH

E F

AC

TS

•M

ost m

ales w

ith F

XS

expe

rienc

e pu

berty

at t

he

sam

e tim

e as

typi

cal p

eers

•So

me

fem

ales w

ith F

XS

expe

rienc

e pr

emat

ure

pube

rty•

All

peop

le w

ith F

XS

are

sexu

al be

ings

rega

rdles

s of

thei

r cog

nitiv

e lim

itatio

ns•

Mos

t peo

ple

with

FX

S sh

ow a

n in

tere

st in

se

xual

cont

ent,

mov

ies o

r rela

tions

hips

Mar

cia

L. B

rade

n, P

hDDownloaded from nfxf.conferencespot.org

TH

E F

ICT

ION

•Pe

ople

with

FX

S do

not

exp

erien

ce ty

pica

l se

xual

need

s and

des

ires

•A

dults

with

a fu

ll m

utat

ion

do n

ot m

arry

, hav

e se

xual

relat

ions

hips

or s

eek

plea

sure

•Pe

ople

with

FX

S ar

e se

xual

perp

etra

tors

•Pe

ople

with

FX

S ca

nnot

be

taug

ht re

spon

sible

sexu

al be

havi

or

Mar

cia

L. B

rade

n, P


Ch

an

ges

in O

ur

Vie

w o

f S

ex

uali

ty i

n

the D

evelo

pm

en

tall

y C

hall

en

ged

•Sh

ift fr

om P

rotec

t and

Defe

ndto

Prep

area

nd

Supp

ort

•Pr

oacti

ve ra

ther

than

Rea

ctive

inte

rven

tion

•In

clusio

n re

quire

s app

ropr

iate

sexu

al be

havi

or•

Acc

epta

nce

of th

ose

with

FX

S re

quire

s the

ab

ility

to d

iscrim

inat

e be

twee

n pr

ivat

e an

d pu

blic

beha

vior

s

Mar

cia

L. B

rade

n, P

hD


SE

X E

DU

CA

TIO

N

•Be

gins

at b

irth

•Ch

ildre

n lea

rn a

bout

sexu

ality

from

their

pa

rent

s, th

e m

edia

and

peer

s•

Peop

le w

ith F

XS

ofte

n pi

ck u

p on

sexu

al be

havi

ors a

nd la

ngua

ge d

ue to

the

resp

onse

s•

Rem

embe

r tha

t beh

avio

r tha

t may

be

funn

y or

cu

te a

t an

early

age

, is n

ot c

ute

whe

n th

e ch

ild

beco

mes

an

adul

t

Mar

cia

L. B

rade

n, P

hD


Sexu

al

Beh

avio

r R

esu

lts

Fro

m

Inte

racti

on

Betw

een

Bio

log

y a

nd

En

vir

on

men

t

�BI

OLO

GY

-Nor

mal

biol

ogica

l urg

es, a

ssoc

iatio

ns a

nd m

otiv

atio

n

�E

NV

IRO

NM

EN

T-T

he e

nviro

nmen

t sha

pes o

ur se

xual

beha

vior

.Re

ligio

us v

alues

, fam

ily n

orm

s and

cul

tura

lex

pect

atio

ns in

fluen

ce o

ur se

xuali

ty-T

he re

spon

se fr

om fa

mily

mem

bers

or c

areg

iver

s

shap

es th

e be

havi

oral

reac

tion

from

the

pers

on w

ith

FXS

•M

arci

a L.

Bra

den,

PhD


Ho

w t

o R

ed

uce t

he R

isk

of

Ex

plo

itati

on

or

Ab

du

cti

on

•K

no

w y

ou

r n

eig

hb

ors

•Id

en

tify

co

mm

un

ity w

ork

ers

; p

ost

man

, d

eli

very

p

ers

on

s

•L

ist

all

pers

on

s all

ow

ed

in

th

e h

om

e

•M

ap

ou

t d

an

ger

zo

nes

in t

he n

eig

hb

orh

oo

d t

o

inclu

de r

eg

iste

red

sex

off

en

ders

•K

eep

yo

ur

ch

ild

’s n

am

e o

ut

of

pla

in v

iew

•P

rovid

e a

n I

D b

racele

t th

at

has

som

e c

od

e t

o

iden

tify

yo

ur

ch

ild

•N

ever

ass

um

e s

om

eo

ne i

s m

on

ito

rin

g y

ou

r ch

ild

in

a l

arg

e g

rou

p

Mar

cia

L. B

rade

n, P


Sex

uali

ty i

n F

em

ale

s

•Be

caus

e fe

male

s are

usu

ally

less a

ffect

ed th

an

male

s with

FX

S, a

num

ber o

f cha

lleng

es p

rese

nt•

Fem

ales t

end

to e

ngag

e in

sexu

al be

havi

or m

ore

ofte

n th

an m

ales

•Fe

male

s ent

er lo

ng te

rm h

eter

osex

ual r

elatio

ns

mor

e of

ten

•Fe

male

s are

mor

e of

ten

expl

oite

d se

xuall

y

Mar

cia

L. B

rade

n, P


Sex

uali

ty i

n F

em

ale

s

•Fe

male

s are

ofte

n na

ïve

to th

e m

otiv

atio

n be

hind

seem

ingl

y in

tere

sted

male

s and

run

the

risk

of b

eing

man

ipul

ated

•Fe

male

s can

misp

erce

ive

inte

ntio

ns a

nd g

et h

urt

emot

iona

lly•

Fem

ales t

end

to o

ver f

anta

size

sexu

al re

latio

nshi

ps “

in lo

ve w

ith b

eing

in lo

ve”

whi

ch

can

resu

lt in

hea

rtbre

ak a

nd m

istru

st o

f fut

ure

relat

ions

hips

M

arci

a L.

Bra

den,

PhD


Sex

uali

ty i

n M

ale

s

•M

ales c

an b

ecom

e ob

sess

ed w

ith a

relat

ions

hip

or ju

st th

e th

ough

t of h

avin

g a

girlf

riend

•Th

is ob

sess

ion

can

resu

lt in

a d

epen

denc

e on

a

girlf

riend

•Sh

ynes

s and

socia

l anx

iety

can

prec

lude

act

ing

on a

n in

tere

st in

a g

irl in

a d

irect

man

ner

•M

ales o

ften

mee

t the

ir se

xual

need

s view

ing

porn

ogra

phy

or a

dult

ente

rtain

men

t

Mar

cia

L. B

rade

n, P

hD


Navig

ati

ng

Sex

uali

ty•

Gro

omin

g an

d m

ainta

inin

g hy

gien

e be

com

e m

ore

impo

rtant

in o

rder

to b

uild

frien

dshi

ps

and

attra

ct o

ther

s•

Sexu

al cu

riosit

y of

ten

trigg

ers e

mba

rras

smen

t du

e to

imm

atur

e so

cial/

sexu

al re

actio

ns•

Ofte

n sh

ut d

own

emot

iona

lly w

hen

aske

d ab

out

sexu

al ur

ges,

fant

asies

or r

elatio

nshi

ps•

Una

ble

to u

nder

stan

d su

btle

sexu

al in

nuen

dos,

adva

nces

and

beh

avio

rs

Mar

cia

L. B

rade

n, P

hD


Teach

Pro

socia

lB

eh

avio

r

•D

iscri

min

ate

betw

een

ap

pro

pri

ate

an

d

inap

pro

pri

ate

beh

avio

r

un

zip

pin

g p

an

ts i

n p

ub

lic

ex

po

sin

g p

rivate

part

s in

pu

bli

c

usi

ng

sex

uall

y e

xp

licit

lan

gu

ag

e

in p

ub

lic

Mar

cia

L. B

rade

n, P

hD


Teach

Pro

socia

l B

eh

avio

r

•T

each

basi

c c

on

cep

ts o

f P

rivate

an

d P

ub

lic B

eh

avio

r,

Pla

ces

an

d P

eo

ple

•b

eg

in e

arl

y

•m

od

el

ap

pro

pri

ate

sex

ual

beh

avio

rs

•u

se r

ep

eti

tio

n t

o h

ab

itu

ate

ap

pro

pri

ate

beh

avio

rs

•te

ach

ad

vo

cacy a

nd

self

defe

nse

•p

art

icip

ati

on

in

so

cia

l sk

ills

gro

up

s

Mar

cia

L. B

rade

n, P


Teach

Pro

socia

l B

eh

avio

r

Private Public

Public

Public

Private

Mar

cia

L. B

rade

n, P

hD


So

cia

l C

om

pass

Pro

gra

m Mar

cia

L. B

rade

n, P

hD


Leve

l 1 sp

inne

r and

car

ds

Mar

cia

L. B

rade

n, P


Leve

l 2 sp

inne

r and

car

ds

Mar

cia

L. B

rade

n, P

hD


So

cia

l C

om

pass

Level

Tw

o

Mar

cia

L. B

rade

n, P


Pre

dic

tors

of

Ind

ep

en

den

ce

•E

ncou

rage

a v

ariet

y of

exp

erien

ces w

ithin

the

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L. B

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Co

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s: Co

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doles

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Suc

cess

CD


FO

R P

AR

EN

TS

The

Fact

s of L

ife…

.and

Mor

e. Se

xuali

ty a

nd In

timac

y fo

r Peo

ple

with

Inte

llect

ual

Disa

bilit

ies.

Lesli

e W

alker

-Hirs

ch, 2

007.

I Ope

ners

: Par

ents

ask

Que

stio

ns a

bout

Sex

ualit

y an

d Ch

ildre

n w

ith D

evelo

pmen

tal

Disa

bilit

ies. D

avid

Hin

sbur

ger,

1993

.

Sexu

ality

: You

r Son

s and

Dau

ghte

rs w

ith In

telle

ctua

l Disa

bilit

ies. K

arin

Melb

erg

Schw

ier,

2000

.

Sexu

ality

and

You

r Disa

bled

Chi

ld: F

or O

ne a

nd A

ll. S

ue M

cLeo

d, 1

985.

TR

AIN

ING

AN

D E

DU

CA

TIO

N

Socia

l Com

pass

: Too

ls fo

r Nav

igat

ing

Life

, Mar

cia L

. Bra

den,

Ph.

D.,

2007

.

Circ

les: I

ntim

acy

and

Relat

ions

hips

, Jam

es S

tanf

ield

Co.,

1993

.

The

Fact

s of L

ife an

d Li

ving

: A c

urric

ulum

that

pro

mot

es so

cial a

nd se

xual

awar

enes

s fo

r per

sons

with

disa

bilit

ies.

Lind

a Co

lley

& L

inda

How

den,

198

8.

Life

Fact

s 1: S

exua

lity

and

Life

Fact

s 2: S

exua

l Abu

se P

reve

ntio

n. N

ancy

Cow

ardi

n an

d Ja

mes

Sta

nfiel

d, 1

989.

RE

SO

UR

CE

S


STA

RS: S

kills

Tra

inin

g fo

r Ass

ertiv

enes

s and

Rela

tions

hip-

Build

ing

and

Sexu

al A

war

enes

s. Su

san

Heig

hway

and

Sus

an K

idd

Web

ster

, 199

8.

STA

RS 2

for C

hild

ren:

A G

uide

book

for T

each

ing

Posit

ive

Sexu

ality

and

Pre

vent

ing

Sexu

al A

buse

for P

eopl

e w

ith D

evelo

pmen

tal D

isabi

lities

. Sus

an H

eighw

ay

and

Susa

n K

idd

Web

ster

, 199

3.

The

Eth

ics o

f Tou

ch, D

avid

Hin

gsbu

rger

and

Mar

y H

arbe

r. 19

98.

Firs

t Con

tact

: Cha

rting

inne

r spa

ce w

ith p

eopl

e w

ho h

ave

signi

fican

t disa

bilit

ies.

Dav

id H

ings

burg

er, 2

000.

Just

Say

Kno

w!,

Dav

id H

ings

burg

er. 1

995.

Pow

er T

ools:

Con

sider

ing

Pow

er.

Dav

id H

ings

burg

er, 2

000.

Soci

aliza

tion

and

Sexu

ality

. Win

ifred

Kem

pton

, 199

8.

Talk

ing

Sex!

Pra

ctica

l app

roac

hes a

nd st

rate

gies

for w

orki

ng w

ith p

eopl

e w

ho h

ave

deve

lopm

enta

l disa

bilit

ies w

hen

the

topi

c is

sex.

Lisa

T. M

aure

r, 19

99.

RE

SO

UR

CE

S


Qu

est

ion

s?


Documents

Sex in the City Is Not Just A Miami Vicepediatrics.med.miami.edu/documents/Sexuality_Marcia_Braden.pdfSusan Heighway and Susan Kidd Webster, 1998. STARS 2 for Children: A Guidebook